A full life for Ádin,
positive perception of your company
can mean your support!
Three-year-old Ádin suffers from a genetic disease that will render him unable to move or breathe within a few years. However, if we collect the 1.3 billion HUF required for gene therapy, he can live a healthy, full life.
Get to know Ádin's story
Ádin Kneifel was born in Debrecen in November 2020, and currently lives here as the only child of his parents. He was born naturally as a planned baby, after a problem-free pregnancy.
A little over a year ago, Ádin's parents noticed that he had become quite loss of appetite, so they took him for a blood test. The liver function values and CK level were very high, leading to further investigations. Finally, on December 17, 2022, the results of the genetic test arrived, revealing that Ádin suffers from the extremely rare Duchenne Muscular Dystrophy. The cure for this condition is only available in the USA, and the cost of the treatment is 1.3 billion Hungarian forints.
Briefly about Ádin's illness and treatment
Duchenne Muscular Dystrophy is a congenital, hereditary disease characterized by the gradual degeneration of muscle cells. Fat and connective tissue, incapable of muscle work, replace the muscle cells, making Ádin increasingly weaker. Around the age of ten, he will be confined to a wheelchair, and later, the disease will also affect his heart and respiratory muscles.
The first gene therapy for the treatment of Duchenne Muscular Dystrophy has been approved in the United States. This is a one-time infusion treatment, and the better Ádin's condition when he receives it, the more effectively the therapy can stabilize his condition in the long term.
Currently available only in the USA, gene therapy can only be used in children aged 4-5 years its current price is HUF 1.3 billion.
Good for Ádin, good for you - everyone wins!
We are aware that a corporate donation is for humanity business factors also play a role in the decision. Of course, this does not reduce the moral value of the donation, nor its importance in Ádin's recovery! However, if these factors may have kept you from making a decision about donating, allow us to mention a few reasons why your company can also benefit from Ádin's support:
- social responsibility is now an important factor in family-friendly trademarks and various awards and competitions
- increasing positive perception and commitment from your own employees, partners, and customers
- we will feature your company's logo on our website and on our continuously growing Facebook page, which already has 4,400 followers
- we will send you an 'Our Company Supported Ádin's Healing' emblem via email, which you can display on your website, and a banner that you can use in your email signature
- we will also send you a certificate personalized with your company name, which you can share on social media or even print and display in your office
- of course, we also send a certificate of the public donation, which thus reduces the tax base